Alzheimer's Foundation of America

Alzheimer's
Foundation of America

Six Stress Reduction Tips for Caregivers During National Stress Awareness Month in April

Alzheimer’s Foundation of America Announces New Educational Tool to Teach Children About Alzheimer’s Disease

(March 14, 2024)— The Alzheimer’s Foundation of America (AFA) announced a new educational tool to help adults discuss Alzheimer’s disease with young children in an age-appropriate way. Gardening with Grandma: An Alzheimer’s Story for Children and Their Families is an educational children’s book created by AFA as a resource for adults. The book is available in English and Spanish through AFA’s e-store at shop.alzfdn.org.  

“When Alzheimer’s enters a family’s life, it often brings many questions—children especially may not understand what is happening or why their loved one is behaving a certain way,” said AFA President & CEO Charles J. Fuschillo, Jr. “This educational tool gives adults a way to explain Alzheimer’s disease to a child in an age-appropriate way, help them understand brain changes, provide tips on how to engage with their loved ones, answer questions and show them that love is a bond that Alzheimer’s can never break.”  

Gardening with Grandma is designed to be a teaching tool adults can use to have a conversation with a child about Alzheimer’s disease. The book follows 8-year-old Luke’s learning experience as he finds new ways to connect with his grandmother who has Alzheimer’s disease. Grandma, who is early in her diagnosis, is able to share with him that even though she has a disease that affects her memory and behavior, she still loves him. The story unfolds as Luke adjusts to her move to a new home with more support.  

Gardening with Grandma also includes a special message to adults to help them have meaningful, age-appropriate conversations with a child when a special person in their life has Alzheimer’s, including guidance on how to initiate the conversation, sample questions to ask the child, and tips to help them better understand. AFA’s Helpline, staffed entirely by licensed social workers and available seven days a week, can also provide information about discussing Alzheimer’s disease with a child or assistance with other Alzheimer’s-related questions. The Helpline can be reached by phone at 866-232-8484, web chat at www.alzfdn.org or text message at 646-586-5283. The web chat and text messages features can serve individuals in more than 90 languages.  

“Young children, in particular, may sense something is amiss when a family member has Alzheimer’s, but may not be able to understand the subtle changes that are occurring early on in the disease progression,” said Jennifer Reeder, LCSW, AFA’s Director of Educational & Social Services. “Reading this book together with your child and having a conversation can help make them more understanding and compassionate, less fearful, and ultimately learn new ways to communicate with their loved one.”   

Gardening with Grandma: An Alzheimer’s Story for Children and Their Families is available for purchase through AFA’s e-store at shop.alzfdn.org in both English and Spanish. Proceeds go toward AFA’s programs, services, and research toward a more effective treatment/cure for Alzheimer’s disease.

Emory University’s Goizueta Alzheimer’s Disease Research Center Awarded Grant for African American Community Outreach Program in Metro-Atlanta from Alzheimer’s Foundation of America

(February 27, 2024) — The Alzheimer’s Foundation of America (AFA) has awarded a $200,000 grant to Emory University’s Goizueta Alzheimer’s Disease Research Center (ADRC) to support their community outreach program which provides educational programs to African Americans about brain health and reducing their risk of Alzheimer’s, as well as encouraging them to participate in Alzheimer’s research.

African Americans are disproportionately affected by Alzheimer’s disease. While Alzheimer’s affects all races and ethnicities, it occurs twice as frequently among African Americans, according to the Goizueta ADRC. Research suggests that these disparities may be related to a higher incidence of hypertension, genetic influences, and environmental exposures.

Goizueta ADRC also notes that African Americans are often diagnosed at the later stages of the disease, when neurological damage is more advanced, indicating that they are more reluctant to see a physician about memory loss or other dementia symptoms, partly due to social factors such as lack of access or distrust of the healthcare system due to experienced or perceived discrimination.

To address these challenges, Goizueta ADRC launched an outreach program to the African American community in metro-Atlanta, working with trusted community leaders to connect people with services and education through free public events. The events provided information about Alzheimer’s and other dementia-related illnesses, the warning signs, ways to reduce risk, and the importance of early detection. AFA previously awarded a $50,000 grant to support the Goizueta ADRC’s efforts.

To further expand this program, Goizueta ADRC launched the Minority Men’s Health Program, a monthly program for men of color to address key strategies to reduce their risk of developing a dementia-related illness, as well as increase their participation in research, where they are underrepresented. Each session uses education, exercise, and dialogue to create a place where men can learn about wellness and take charge of their health. Participation in research is promoted as a means of improving health behaviors. The $200,000 AFA grant will support this program.

Dr. Monica Parker, Director of the Outreach, Recruitment, and Education (ORE) Core, and the Minority Engagement Core (MEC) at Emory University’s Goizueta ADRC and a member of AFA’s Medical, Scientific, and Memory Screening Advisory Board, said “These funds will allow us to expand our successful outreach into the larger metro Atlanta community of minority men.”

Individuals interested in learning more or participating in Goizueta ADRC’s program can call 404-712-0367.

“AFA is pleased to work with the Goizueta ADRC to break down barriers and work to eliminate health disparities,” said Charles J. Fuschillo, Jr., AFA’s President & CEO. “Their outreach program empowers African Americans with knowledge to help reduce their risk of developing Alzheimer’s and get actively involved in finding a cure by participating in research. We are pleased to help them enhance their efforts by making this investment in hope.”

  AFA is able to fund projects such as this through the generosity of individuals and organizations. Those wishing to make a donation to support AFA can visit www.alzfdn.org/donate. Support and services for families affected by Alzheimer’s disease and other dementia-related illnesses are available through AFA’s Helpline by calling 866-232-8484, sending a text message to 646-586-5283, or web chatting at www.alzfdn.org. The AFA Helpline is available 7 days a week.

Four Tips to Celebrate Valentine’s Day with a Loved One Living with Dementia

(February 7, 2024)—Valentine’s Day can create challenges for relationships in which a loved one has dementia. Because of the illness, they cannot express themselves or remember things as they did before. To help families, friends and partners affected by dementia, the Alzheimer’s Foundation of America (AFA) is offering four tips on how to celebrate Valentine’s Day in a dementia-friendly manner.

“Love and care are important to all of us,” said Jennifer Reeder, LCSW, AFA’s Director of Educational and Social Services. “When dementia enters someone’s life, it can change many things, including the dynamic of their relationships. Being adaptable and open to change can help families affected by dementia find alternative ways to express love, show support and connect with one another on Valentine’s Day and throughout the year.”

To create a dementia-friendly Valentine’s Day, just use “L.O.V.E.”:

  • Look back together. Go through old photos together with your loved one and describe them—who the people are, where it was taken, what the occasion was, etc. Simply talking about shared moments: a vacation, celebration, or another occasion that you happily enjoyed together, is a great way to celebrate the love and special bond you share.
  • Open yourself to connecting in different ways. The impact of dementia might make it challenging to do everything exactly as you once did. Still, there are numerous ways to maintain, restore or re-create intimacy, love and connection. Sharing a meal, watching a familiar movie, enjoying favorite music, or just taking a walk together are all ways to stay connected. Nonverbal communication, such as gentle touching, smiles, and eye contact, can also support or strengthen connections with someone no longer able to verbalize their emotions as they had before. The time-honored Valentine’s Day gift of flowers is another way to enjoy the holiday together. Purchase a bouquet of fresh flowers, (preferably ones which are non-toxic to humans or pets, such as roses, orchids, or sunflowers) set it on a table, and enjoy the fragrance together—the scent can uplift mood, promote positive feelings, and stimulate the brain.  
  • Verbalize your feelings. Write a Valentine’s card and read it out loud to your loved one. Even if they can no longer grasp the full meaning, your feelings are conveyed, and the act of writing it and communicating your love can raise your own spirits.
  • Express yourself in the person’s love language. Physical touch, words of affirmation, quality time, gifts, and acts of service are all types of “love languages” people use to give or receive love. Know what types of gestures your loved one responds positively to and try to “speak to them” in that language. Be mindful that these gestures may change over time as the dementia-related illness progresses.

AFA’s Helpline, staffed entirely by licensed social workers who are specifically trained in dementia care, can provide additional information and support for families. The Helpline is available seven days a week by phone (866-232-8484), text message (646-586-5283), and web chat (www.alzfdn.org).

Protecting Individuals with Dementia from Wandering During the Winter: 4 Tips from the Alzheimer’s Foundation of America   

High School Seniors Impacted by Alzheimer’s Invited to Apply for AFA’s Teen Alzheimer’s Awareness Scholarship Contest

  • Having a loved one with Alzheimer’s disease or another dementia-related illness
  • Helping care for someone with Alzheimer’s disease or another dementia-related illness
  • Volunteering or working in a care setting that serves individuals with dementia
  • Raising Alzheimer’s awareness in their school or community
  • Conducting Alzheimer’s research

A 2024 New Year’s Resolution Everyone Should Make: Get a Memory Screening

Alzheimer’s Foundation of America informs individuals about the importance of regular memory screenings, invites people to schedule a free screening appointment through the National Memory Screening Program

 

(January 2, 2024)— With a new year upon us, the Alzheimer’s Foundation of America (AFA) is encouraging individuals to make a new year’s resolution to get a memory screening. Regular memory screenings are an important early detection tool of potential memory problems and should be part of everyone’s health and wellness routine. AFA’s National Memory Screening Program offers free, confidential memory screenings every weekday through secure videoconference technology, with no minimum age or insurance prerequisites. Appointments can be scheduled by calling AFA at 866-232-8484 or by clicking here.

“Memory screenings are important for everyone, even if they are not currently experiencing memory problems. Just as with other facets of your health, early detection of potential memory issues is critically important,” said Charles J. Fuschillo, Jr., AFA’s President & CEO. “Start off 2024 by making, and keeping, a new year’s resolution to get a check-up from the neck up today.”

Memory screenings are simple, quick, and noninvasive, and consist of a series of questions to gauge memory and other cognitive functions. Memory screenings are similar to other routine health screenings, such as those for blood pressure, cholesterol, and skin checks. Results are not a diagnosis of any particular condition, but a memory screening can suggest if someone should see a physician for a full evaluation.

Early detection of memory impairments is extremely important. Many different conditions can cause memory issues, including treatable or curable conditions such as vitamin deficiencies, thyroid disorders, urinary tract infections, sleep apnea, stress, anxiety, and depression.

Even in the case of a dementia-related illness such as Alzheimer’s, early detection can provide greater opportunity to begin treatments that can help slow the symptoms of the disease, as well as taking part in a clinical trial. In addition, it affords the person the chance to take advantage of community services, such as support groups and therapeutic programming, which can help maximize quality of life, as well as have a greater say in making legal, financial and health care decisions.

“Memory screenings empower people to be proactive about their brain health. You are never too young or too old to get a memory screening,” said Donna de Levante Raphael, PhD, Director of AFA’s National Memory Screening Program. “Detecting a memory issue early rather than later gives you more opportunity to take action, which is why everyone should get memory screenings regularly.”

AFA’s National Memory Screening Program provides free, confidential memory screenings every weekday through secure videoconference technology; a smartphone, tablet, computer, or any other device with an internet connection is all that’s needed. Screenings can be provided in English or Spanish. Memory screenings are also covered by Medicare as part of the Medicare Wellness Program.

Individuals wishing to schedule a free memory screening appointment through AFA’s National Memory Screening Program or learn more about memory screening can call AFA at 866-232-8484 or visit AFA’s website by clicking here.

Making the Holiday Season Dementia-Friendly: The DOs and DON’T’s

Alzheimer’s Foundation of America Offers Tips for Families Caring for a Loved One with Dementia

 

NEW YORK (December 12, 2023)— With the holiday season in full swing, the Alzheimer’s Foundation of America (AFA) is offering tips to help the millions of Americans caring for a loved one with dementia celebrate the holidays with their loved one in a dementia-friendly manner.

“People with dementia can still, and should be encouraged to, enjoy and participate in the spirit of the holiday season. Because of the way dementia-related illnesses impact the brain, they may not be able to do it exactly as they did prior to the onset of dementia,” said Jennifer Reeder, LCSW, AFA’s Director of Educational and Social Services. “By being adaptable and sensitive to the person’s needs and wishes, caregivers can help create a joyous, dementia-friendly holiday season for their loved one with dementia.”

AFA offers these dos and don’ts for creating a dementia-friendly holiday season:

Do: Keep decorations simple. Decorating is part of the holiday season fun, however, too much stimulation may be challenging for someone with dementia. Keep decorations festive, but simple. Instead of elaborate decorations, choose a few favorite items. Phase in decorations over a period of days so that changes to the person’s environment are less confusing.

Don’t: Overdecorate or use dangerous decorations. Too many flickering lights or noisy items could overwhelm someone living with dementia. Changes to the person’s environment might cause disorientation, which may then lead to wandering. Be aware of safety issues: fragile decorations can shatter into sharp fragments and decorations that look like food or candy could be mistaken for edible treats, creating a choking or dental hazard.

Do: Adapt past favorite traditions or create new and viable ones. Build on old traditions when appropriate, such as enjoying favorite music or movies, or looking at pictures of past holiday celebrations. Adapt past traditions as well; if the person always sent out holiday cards or baked holiday cookies and still wants to do so, do it together with them. If they can no longer shop for gifts for their loved ones, invite them to help with wrapping the gifts so that they feel involved. Start new traditions that center on activities and events the person enjoys and can do, such as touring neighborhood holiday lights; plan to do it together. Whenever possible, ask what traditions are important to your loved one—it keeps them engaged, and helps you prioritize and plan appropriately.

Don’t: Dwell on past practices. Take a strengths-based and person-centered approach and incorporate what the person can do and what they choose to do now, rather than dwelling on what they used to do. Focus on those things that bring joy and let go of activities that seem too stressful. It is normal to feel some sadness about changes and losses, especially during a holiday. Acknowledge these feelings and then move on to new ways to celebrate.

Do: Create a safe and calm space. Create a space where your loved one can sit comfortably during a holiday gathering, and where guests can visit in small groups or one-to-one. To the greatest extent possible, maintain the person’s normal routine when scheduling visits or holiday gatherings; disruptions in routine can be difficult for someone living with dementia.

Don’t: Neglect safety. Be very mindful of potential tripping hazards on the floor, such as wires for decorations, as dementia can cause changes in vision, depth perception, and gait. Securely hook Christmas trees to the wall to avoid falls and use menorahs or kinaras with electric candles to reduce fire hazards.

Alzheimer’s disease, which is the most common form of dementia, affects more than 6.2 million Americans. The number of people in the US with Alzheimer’s disease is expected to more than double by 2060, according to the Centers for Disease Control and Prevention (CDC).

The AFA Helpline is available seven days a week to help provide additional information about creating dementia-friendly holidays or any other caregiving questions. Connect with a licensed social worker by phone (866-232-8484), webchat (www.alzfdn.org) or text message (646-586-5283). The web chat and text message features can serve individuals in more than 90 different languages.

 

6 Steps to Make Thanksgiving Dementia Friendly

Alzheimer’s Foundation of America Offers Information for Families Caring for a Loved One with Dementia

(November 16, 2023)—  With families and friends nationwide preparing for Thanksgiving, the Alzheimer’s Foundation of America (AFA) is offering 6 steps to create a dementia-friendly Thanksgiving for the more than 6 million Americans living with Alzheimer’s disease or another dementia-related illness.

“We want individuals living with dementia to experience the joy and togetherness that comes with Thanksgiving, which is why it’s important for family caregivers to be proactive and sensitive to their loved ones’ needs,” said Jennifer Reeder, LCSW, SIFI, AFA’s Director of Educational and Social Services. “A few small adaptations can make a big difference in enabling someone with dementia to participate in, and enjoy, Thanksgiving celebrations.”

AFA offers the following 6 steps to help make a Thanksgiving celebration dementia-friendly:

  • Factor the person’s routine into scheduling the celebration. Changes in daily routine can be challenging for someone living with dementia, so to the greatest extent possible, plan the celebration around their routine. Consider holding celebrations earlier in the day to minimize the potential impact of “sundowning” – a common syndrome that can cause agitation and confusion in the late afternoon-early evening as the sun sets.
  • Plan for help. Relatives and friends are often eager to assist but may not know how. Give them specific tasks that they can help with, such as asking them to bring a dish, help with cooking, shopping, or decorating, or spending time with your loved one while you are preparing for the celebration.
  • Prepare your loved one. Try to familiarize them with the guests beforehand by showing photos, sharing stories, or arranging a phone or Facetime chat prior to the celebration. You could also make an invitation to the event to share with your loved one so they know the details and that it will be happening.
  • Prepare your guests. Consider sharing beneficial information with guests about your loved one—such as ways to communicate with the person, what they respond well to, and what may cause distress—especially if they have not seen the person recently. This will help facilitate positive interactions and engagement.
  • Keep your loved one involved.  Make adaptations that enable your loved one to participate in the celebration by focusing on what they can do, rather than what they cannot. Invite them to help by preparing ingredients for a simple dish, setting the table, decorating, and other activities. Playing familiar music or going through old photos are forms of reminiscence that can bring joy and foster positivity during the celebration. Singing familiar songs, arts and crafts, and having a snack together are great intergenerational activities that kids can participate in as well.
  • Have a quiet space available. Prepare a quiet place away from the crowd where the person with dementia can go if the celebration becomes too much for them. Have familiar comfort items available (i.e., favorite blanket, sweater, stuffed animal) that will help them feel safe and comfortable. Try to control the flow of visitors when possible; those in the early stages are better able to interact than those in later stages.

Families who have questions about creating a dementia-friendly Thanksgiving celebration or any other question relating to dementia or caregiving can contact the Alzheimer’s Foundation of America’s Helpline, seven days a week, by phone (866-232-8484), text message (646-586-5283), or web chat (www.alzfdn.org).

Alzheimer’s Foundation of America Opens New Respite Care Relief Park in City of Yonkers

(November 3, 2023) – The Alzheimer’s Foundation of America (AFA) joined with Yonkers Mayor Mike Spano and representatives from the Yonkers Department of Parks, Recreation & Conservation to open the Yonkers Respite Sanctuary, the first of its kind in the City of Yonkers and in Westchester County.

The Yonkers Respite Sanctuary, located on the corner of Dock Street and Peene Lane, is an educational and recreational dementia-friendly place where caregivers can feel comfortable bringing their loved one to relax and enjoy a peaceful outdoor setting, while also gaining helpful educational information.

“Thank you to the Alzheimer’s Foundation of America and our Yonkers Department of Parks, Recreation, and Conservation for creating this haven for our community. The Yonkers Respite Sanctuary truly defines the essence of our Yonkers waterfront,” said Mayor Mike Spano. “This allows people living with Alzheimer’s and those caring for them to pause and reflect in a peaceful setting. The educational resources here will advise them and give them a sense they are not alone in this journey.”

“Our City parks are all places for respite and relaxation, they are truly for the people, the community, and their families,” said Yonkers Parks, Recreation & Conservation Commissioner Steve Sansone. “This sanctuary affords impeccable views and the sereneness of the Hudson River. It is a unique destination for those facing dementia or in need of meditation or socialization. We are grateful for the partnership with the Alzheimer’s Foundation of America.”

The Yonkers Respite Sanctuary overlooks the Yonkers waterfront with a gazebo, green space, and educational kiosks about Alzheimer’s disease including ways to avoid caregiver burnout, building caregiver skills, and a team of support; and resources available to help.

According to the Centers for Disease Control and Prevention (CDC), more than 6.2 million Americans live with Alzheimer’s disease right now, including more than 410,000 in New York State.